Rare Disease Day 2019

Today, February 28th, is International Rare Disease Day.  What is a rare disease? The answer to this question varies depending on where in the world you live. If you live in the United States like I do, in order for a disease to qualify as rare, less than 200,000 people are affected by the illness … Continue reading Rare Disease Day 2019


Blogmas Day 2: Why Christmas Isn’t My Favorite Holiday

I mentioned in Blogmas Day 1 that since my (step) mom passed in March of 2011, our family has struggled to muster the Christmas cheer. I haven’t really talk about my mom’s death here… not for any particular reason, it just hasn’t really felt like the appropriate time. Maybe I will share more after the … Continue reading Blogmas Day 2: Why Christmas Isn’t My Favorite Holiday

#ChronicallyIllAndThankful Posts

A few days ago I mentioned that during the month of November I would be posting daily one thing involving or surrounding my chronic illnesses that I am grateful for. Below you can read the posts that I have shared. Day 1: Today I am grateful for physical therapists. About 6 weeks ago I started … Continue reading #ChronicallyIllAndThankful Posts